
We are raising funds to get urgently
needed medical treatment for our friend Phoenix Marie, who has been
battling a life-threatening progressive heart valve disease since 2006.
Phoenix was not covered by health insurance at the time of her first
heart failure, so all her medical treatment has to be paid for.
We hope you will help us raise the funds she needs to complete her
treatment. Even the smallest of donations could help save her life.
THE SITUATION
Phoenix had her first heart failure and near death experience in 2006.
She has experienced several similar life-threatening heart failures
since then, one of which caused her to fall and dislocate a cervical
vertebra (C2) next to the skull. The vertebra twisted 180 degrees
sideways pinching vital nerve bundles going into the brain and the
spinal column. As a result, she has suffered excruciating pain,
paralysis, and temporary brain damage in the form of memory loss,
hearing loss, partial blindness, and vertigo. She has been mostly
bedridden for the last three years and often has difficulty doing even
minor tasks.
Phoenix’s doctor has warned her that without continued treatment, these
symptoms and the brain damage could become completely disabling and
permanent. The degeneration of the nerves in her brain is similar to
patients her doctor treats who are in their 80s and 90s. Phoenix has
just turned 40 years old.
With no insurance coverage, Phoenix and her family have had to finance
all her medical expenses to date. Unable to work since her initial
heart failure, Phoenix sold most of her valuables, clothing and shoes
in order to pay to see a heart specialist and fund the tests and costly
x-rays needed to diagnose her condition. Her heart disease is a
congenital defect (from birth) that was misdiagnosed in childhood as
harmless and left unchecked.
Phoenix’s family have managed to find a reputable physician who has
been giving her a tremendous discount on her treatment and she has been
under his care for two and a half years. She only has one more year
left of treatment and must complete this in order to recover fully, but
her family have now run out of funds and have no other resources apart
from donations at this time.
LATEST NEWS
Thanks to the donations received through this page (which was created
in November 2009), Phoenix has been able to continue her treatment and
has been experiencing a promising recovery. Her dislocated cervical
vertebra is almost in place and since May 2010 she’s been recovering
her hearing, vision and her balance.
In the next year to come, she will be facing consistent medical
treatments, but with no way to physically work or bring in an income
until possibly the beginning of 2011. She is on a pay-as-you-go basis
right now for her doctor consultations, X-rays, medical tests and
medication, any hospital visits and travel, and she has thousands of dollars in
unpayable medical debt.
At present, her treatment has ceased due to lack of funds coming in.
It’s imperative that we continue to raise funds now so the cumulative
affects of the last eight months of treatment aren’t wasted and her
condition doesn’t decline again.
OUR GOAL
If Phoenix receives one more year of consistent treatment with
occasional monitoring afterwards, her doctor believes that she will be
able to lead a normal life with minimal pain and will be capable of
most activities. If not, she will have permanent hearing and brain
damage, vertigo, become crippled, end up in a wheelchair and will
assuredly die a very painful death at too young an age.
The total cost of one year of treatment and medication at present is
roughly $900-$950 dollars a month, depending on how many days there are
in the month. She needs consistent treatment every month for the next
12 months – and our goal is to help her to achieve this.
ABOUT PHOENIX
Phoenix led an extremely active lifestyle before her health problems
occurred. She worked as a full-time corporate manager for 16 years and
was also a multi-faceted musician, dancer, photographer and artist. She
studied and worked in the health industries for many years and always
took care of the people around her – working overtime when others were
sick, caring for the elderly and the homeless, and helping counsel
troubled teens in various parts of the country. She often apprenticed
with professional healers and was learning how to counsel chronically
ill patients, as she planned to pursue a future career in the healing
arts.
SUPPORT FOR PHOENIX
Many people in the media and the music industry are supporting
Phoenix's medical fundraiser in various ways. Among them is legendary
British journalist and photographer Mick Mercer, who has created a
rare, historic photo-book of famous musicians throughout the decades
and is donating the profits to the Phoenix medical expense fund. This
book will only be available until we have reached our fundraiser goals
and will then be withdrawn from sale. For more information, please
click here:
http://www.mickmercer.com/goth_solidarity.html
Mick Mercer has also featured Phoenix in his online magazine, The Mick
Issues #50 and #52. The interview and article included examples of
Phoenix's photography, which she hopes to soon be selling in a gallery
website format. You can read the article here:
Help Save A Life: Phoenix's article/interview in The Mick
FUTURE FUNDRAISING
Phoenix is a talented hobby photographer and has just received
permission from one of her favourite steampunk-themed
museums-of-oddities to sell a select number of unique and hard-to-find
prints of her photos of the venue in order to help her fund. She will
be editing her photos as soon as she is able to pass a revised eye exam
and have her vision corrected. The prints will be available through the
Lacy B Timeless photography website. Links and updates will be posted
soon.
Phoenix also has a number of eBay auctions in the works, selling
vintage clothing, gothic, Victorian, Southeast Asian home decor and
steampunk related items. These links will also follow soon.
LINKS
You can find Phoenix on the web by clicking the links below, or if you
need more information, you can send inquiries to ceilidhcowboy at gmail
dot com.
HOW YOU CAN HELP
If you would like to donate to Phoenix’s medical expenses, please
click on the ChipIn! button below. This will enable you to make a
secure payment through Paypal.
If you live in the UK and wish to make a donation in sterling, please click the Donate button below.
We would also be grateful if you could help us to spread the word about this page. You can do so using the share widget below.
MEDIA CONTRIBUTORS
Warren Ellis
Paul Devine
Mick Mercer
Craig Cameron-Fisher
Rat Scabies of 'The Damned'
Christopher Dawes, author of 'Rat Scabies & The Holy Grail'
DJ Martin Oldgoth
Andy Whitaker of 'The Sun and The
Moon'
Max Rael of 'History of Guns'
Scary Lady Sarah
Vincent Grech of 'Thanatos,
SisterMachineGun, Stromkern and I:Scintilla'
DJ Cyberpagan (most recent the Gothic Pogo Festival)
Eveghost and 'Christ VS Warhol'
Karin of 'Collide'
The band 'Siiiii'
Michael Barrie of 'Joan of Arc Family'
and Return To The East
Shyla Doll of Uglyshyla Dolls
Amy Danielson of 'The Gypsy Kiss'
P Emerson Williams
the band 'Feeding Fingers'
Irish American News newspaper
Carpe Nocturne Magazine